This next post is kind of dry – not that many pictures to share!
Where to begin… after Finn’s birth at 3am on Monday morning we spent the rest of the week in the hospital. It was really rough on me due to the surgery and everything else I went through. Dan had a test Tuesday morning so my mom spent Monday night at the hospital with me so that he could go home and study and take his test the next morning. We had a little bit of a rocky night but we figured it out thanks to the help of our nurses. The rest of the week was just us figuring everything out and getting to know little Finn. He slept a lot of the week, which was really nice for Dan and I who were absolutely exhausted. We had many visitors throughout the week which was really nice. Dan’s mom, Grandma Jo, and our good friends Jason and Julie both came that first day. Crystal left Tuesday morning. We were sad to see her go, but so happy she got to be there for one of the happiest moments of our lives! My brother, Eric, sister-in-law, Mary, dad, and brother, Jack all came to see me as well throughout the week. So good to have the support of family and friends!
Due to everything my doctor really didn’t want me to stress about breastfeeding at all. I went through a lot and with being anemic and having low platelets on top of the surgery, I was really weak and just couldn’t really deal with that right away. I tried to pump throughout the week but had a really low milk supply as well. Still working on that. So, he’s pretty much been formula fed since day 1 and I’m actually okay with that. It wasn’t in my plan, just as practically everything else (other than Finn being born) wasn’t either! I’m still just focusing on getting better as I have a long road ahead of me for that.

Finn in his "Coming Home" outfit - the same thing his Uncle Jack wore home from the hospital almost 24 years before!
We finally got to come home Friday afternoon. Dan’s brother, Tom came over that evening and made us a delicious meal of BBQ chicken, corn on the cob, and baked beans. I was feeling really exhausted that day and not myself. Dan was incredible (sensing a theme here?) and basically took care of Finn most of the day and the following so that I could rest. He knew I was pretty miserable. I don’t remember much from the next day other than that around mid-afternoon I started to get a headache. I didn’t think much of it other than maybe it was just due to all the meds and me coming off of everything from the week. Eric and Mary were supposed to come over this afternoon and I had to cancel on them because I felt so bad. I remember talking to my mom on the phone and telling her that I had a headache. I thought it was either just a normal headache or possibly a spinal headache from the epidural which I was told was a possible side effect. It persisted throughout the evening and night. At 9:30pm I texted my mom and said that I “definitely had a spinal headache.”
What happened next would shock us all…
I woke up at around 4am with the worst possible headache I could ever have imagined. And I’ve had some bad ones that have even resulted in a call to the fire department, so I know a thing or two about a bad headache! That night Dan was up with Finn almost the entire night due to me not being able to help, so I was really trying not to burden him with any more than he already had on his plate by waking him up to complain about the pain. I texted my mom again at about 4:40am telling her that I needed her really bad and wondering if she could come over so that I could call my doctor and have Dan take me over to the ER. I said that I couldn’t sit or stand due to this spinal headache. Obviously, she was sleeping. I called her and my dad a few times and texted again at 9:30am that I needed her really, really bad. I texted my mother-in-law as well who was already planning on coming over that morning to spend time with us and Finn, and asked her if she could come over ASAP. She got the text at about 9:30am and came over. By that time I had finally gotten a hold of my parents and as soon as my dad answered I basically just wailed into the phone about how I needed them to come over right now and I was in excruciating pain. My dad sensed the urgency and said they’d jump in the car and be over.
Jayne showed up and we decided she was going to take me to the ER since Dan had literally been up all night and I felt he needed a little more sleep. We got to the ER and from there my memory is really fuzzy so most of this is what other people have recounted for me of the day’s events. I remember sitting in the ER hearing the triage nurse talking to some people who did not sound even close to as bad as I did. I was crying, moaning, and I know that anybody in their right mind would have seen that. They *finally* called me up and took my blood pressure which was sky high, 200+ over something. I answered her questions all the while being in the worst pain of my life. I told her I had just had a baby, and epidural, and I thought this was a spinal headache. Then my mom and dad came in and came back to where we were. Jayne told me later that she had never seen a person in as much pain as I was in at that moment. I started vomiting from the pain and then that’s when I told Jayne she should go home and be with Dan since he hadn’t slept that night and he was going to need help with Finn so he could get some sleep. I was taken back to a room and immediately given morphine. Did. Not. Help. One. Bit. This pain was pretty much unkillable.
I have no concept of how much time passed during the day. At some point I was taken back for a blood patch since they had assumed this was indeed a spinal headache from the epidural. I remember getting the blood patch and then being wheeled back to my room. About 15 minutes after that I told my mom that I had lost my peripheral vision. Then a bit later I had completely lost all of my vision and saw nothing but black. At this point I was so doped up on pain medications that apparently it didn’t bother me that much, meanwhile I found out later that everyone else was freaking out. Mom was grabbing nurses every time they passed by and she said nobody seemed real alarmed by this! This hospital, which is supposed to be an award winning stroke response center – was not concerned about this. They never even shown a light in my eyes to check for dilation or anything like that. Incredible. I don’t remember anything else from that day but apparently I had a CT Scan and an MRI and they both found nothing. And then about 5:00pm I was discharged. Completely blind. They told my parents to take me to an eye doctor that was running a clinic on another floor until 6:00pm, which they did, still in complete shock that I was discharged blind. The ER doctor (one who is going to get a stern letter) told my parents, “There aren’t always answers for why things happen!”
I was wheeled to this eye doctor’s clinic and the doctor determined that there was nothing wrong with my eyes, they were perfect and that this was an assault to my brain and I needed to be readmitted immediately. He wheeled me and my parents through the hospital back to the ER and told them I was to be readmitted.
From there, apparently it was really rocky. The triage nurse wanted to admit me as if I was a completely new patient and started going through the same process from before that I had already gone through. My mom got really upset to which the nurse got real snippy with her and said that she “didn’t have to take her hostility”. My mom responded that she wasn’t being hostile, she was being desperate, because her daughter could be having a stroke. There were no rooms in the ER so I guess I was taken back and kind of moved around until there finally was a room for me. At some point my mom and Dan switched places once he was told the seriousness of it so he could be with me and she went home and took care of Finn. I also found out days later that Eric came to be with me that night as well. The only thing I remember from the rest of the day was there were a couple times I would ask everybody to stop talking because it was hurting my head so bad. At some point Dan or my brother noticed that I was playing with my tongue and that it was bleeding. When I stuck it out there were visible teeth marks in it and it was completely numb, and stayed that way for almost a week. More signs that there was some kind of episode, and another sign the doctors would ignore.
There was never any real help in the ER that day and no doctor ever had any real response as to what was wrong with me and why the blood patch hadn’t worked and why I lost my eyesight. Apparently, the night ER doctor told Dan that I had some kind of postpartum psychosis which absolutely devastated and freaked him out. He said he was doing things like waving his hands in my face, putting his face real close to mine and then saying something which made me jump, etc. just to make sure that I really couldn’t see since the doctor had said it could be a psychosis and *gasp* that I could be faking! My parents and Dan all went home and furiously researched it and all felt that it wasn’t me, none of the symptoms or characteristics fit. And it certainly didn’t!!! Either way, I was admitted that night into the Medisurge ward (instead of the L&D or Postpartum where I should have been from day 1!!!). Dan stayed the night with me while my mom stayed with Finn.

Because I have no shame of even an absolutely horrible picture - here's me in the hospital, you can see there was just nothing in my eyes, I was in a complete daze. As my friend Nutty says, I look like I just got out of jail. And that's how it felt!
I spent the next day in the dark again, but at some point I was able to see some shapes and figures, like if somebody was standing over my bed. I laid in bed all day with no doctor’s care, just the nurses checking on me, giving me pain medicine for the headache that was still there… waiting for answers. My mom said I asked the same questions over and over again like, “Was Finn born already? What day was he born? What day is it? Where am I?” and after she would answer them, I was ask them again. I was really really devastated that I was separated from Finn. I remember thinking how I didn’t care about seeing anything else ever again, other than his face. I was afraid that I was going to be blind forever and only having 6 days with him, that his face was slowly going to fade from my memory. I thought how cruel of a world this is to only give me 6 days of seeing his sweet face. I was very upset and would break down periodically throughout the day anytime I thought of him. I was also missing him like crazy. I wanted so bad to hold him, but knew he wasn’t allowed in the hospital. At the end of the day the eye doctor from the previous day came by to check on me and checked my eyes and dilation and they were still “perfect”. Then finally, a neurologist, somebody who might actually be able to give us some answers, came in. However, at first he had no answers. No explanation. He did however say that he didn’t expect to find anything on the MRI and CT scan that the emergency room did because they weren’t the right tests for the kind of injury I may have suffered to my brain. He was going to request that I have two other scans, an MRA and an MRV which checks both the arteries and blood vessels and then we’d go from there. I can’t remember if I got those later that night or the next morning, but that was it for that day.
Sometime the next day (what are we at, Tuesday now?) I was moved from the Medisurge ward to the Postpartum ward. No, not because I was actually postpartum and they thought I should be in the care of an OBGYN (as I SHOULD have been), but because they needed my room for another patient on the Medisurge ward. I was still in the care of a regular internal medicine doctor while in the Postpartum ward. Over there I was reunited with all the nurses who took care of me the first week and they all couldn’t believe I was back. One nurse said to me that she remembered my blood pressure creeping up that week and when she mentioned it to my doctor he said, “We aren’t going to worry about it”… and she put that in the chart supposedly. This day my vision radically improved. I could see most everything including color, faces, how many fingers a person would hold us, it was just really shaky and my eyes couldn’t focus on anything and I would get sick if I looked at something for too long. Again later that afternoon the neurologist came back and said that the two scans he ordered came back fine – NO STROKE. Thank goodness. He said I definitely had swelling due to an eclamptic seizure and that I had Posterior Reversible Encephalopathy Syndrome and was in a Postictal State. Basically I had a seizure due to my extremely high blood pressure, followed by a coma, then blindness, confusion, and memory loss. He said I would most likely recover 100% but that it could take months and he wanted me to follow up with him in two months where we would redo all of the scans to check for any remaining brain swelling and/or damage. I asked if I would be able to go home and he said that with my blood pressure, most likely not. Bummer. So, we figured I was there for another night to watch my blood pressure.
I slept alone this night so that my mom could go home and get some uninterrupted sleep and Dan was home with Finn. At 11:50 that night several nurses came in my room and said I was being moved back to the Labor & Delivery ward and started unhooking my bed. I was feeling really jaded about the entire experience and hospital at this point that I sarcastically said, “Why, does somebody need this room, too?” and then I realized it was my really nice nurse from the night Finn was born and she told me that somebody had (finally) called my OBGYN and she put in orders to have me moved to L&D where I was going to be put on a Magnesium Sulphate drip for 48 hours to treat my high blood pressure and eclampsia. She also told me it was going to make me feel really really crappy and that because of that I would not be able to get out of bed for those 48 hours. Which meant a catheter. However, she remembered how many complications I had from the catheter that she said if I would go in a bed pan for her that she would skip the catheter. I was all for it. Apparently while on Mag, they have to monitor your output very closely to ensure that it does not build up in your bloodstream and exits the body completely. She was completely right about it making you feel crappy. My headache got worse, my vision blurrier, I was nauseaus, hot, I felt weak… I just wanted to curl up in a ball at that point and be put to sleep and not feel anything until the 48 hours were up. But I had to be strong and get through it so I could go home to Finn, I thought. I just remember feeling very sorry for myself. I texted my mom and Dan and said, “Of all the nights to be alone – they’re moving me again.” which probably made them feel even worse than they already did!

Me being pumped full of Magnesium Sulphate to lower my blood pressure and keep me from having another seizure.
The next morning the day nurse told me that I could have Finn in this part of the hospital because he was my child (not a visiting relative). HAPPY DAY! I called Dan so fast and told him to bring that sweet little angel to me right away. Dan showed up shortly after and I was reunited with Finn. Nothing else mattered to me then. I could deal with any treatment they wanted to give me because I had my little family there with me. It made the Mag not so bad. My spirits were lifted. I was on the Mag all day. Dan, Finn, and my mom spent the day with me and in the evening my dad came. It was so good to have support there with me. Being in a hospital can get really lonely and depressing so I found out how important it was to have people who care about you just being there. I can’t forget that Jayne went and picked up Penny at this point and took her to her house since Dan and Finn could now spend the night with me at the hospital. This way Dan didn’t have to worry about going home every so often to feed Penny or let her out to go potty. I was told that my blood pressure was coming down enough that they were going to stop the Mag at midnight, after 24 hours. I was relieved, I felt things were headed in a positive direction and I would be home soon. My regular OBGYN called and talked to Dan and explained that nobody at the hospital had called her about me until moments before they moved me to the L&D on Tuesday night and started the Mag. Once she heard about me, she knew it was eclampsia and said that she immediately put those orders in otherwise it could have been life and death. Another failure on the hospital’s side! I can’t believe that a woman who had just given birth 6 days before presenting herself in the emergency room with all of these symptoms, and the OBGYN wasn’t immediately called? So many times during this fiasco we felt that Google was a better doctor than anybody else there. We still aren’t sure who called my OBGYN, whether it was the neurologist or a nurse.

Me seeing Finn for the first time in 3 days. Reunited and it feels so good!
Dan had school the next day (Thursday) and I wasn’t allowed to be alone with Finn so my mom had to come early again that morning. My blood pressure was up and down all day. I was put on 2 different blood pressure medications, Labetalol and Procardia, to help regulate it. One of my OBGYN’s came in and spent about an hour talking with me and my mom and very carefully answering all of her questions. I think he could sense that we were upset and that we knew he was the one that discharged me the week before with high blood pressure. He also came back and spent just as much time or more with us on several other occasions that week. He explained how extremely rare eclampsia was this long after delivery (6 days). I had absolutely perfect blood pressure my entire pregnancy up until labor. So, really it was confusing to everybody. What they determined is that I was probably developing pre-eclampsia but since we induced on the 17th it never went through that stage and instead turned into full blown eclampsia, which is basically a seizure. They said it was a really good thing that we did induce because if I had had the seizure while Finn was still in me it could have been very detrimental for him. It was also this day that the nursing staff presented me with a little charm bracelet in a pretty little box because they felt so bad about everything I had gone through. Buying me so I don’t sue? Whatever. It’s still sitting in that box.
Eclampsia, which is considered a complication of severe preeclampsia, is commonly defined as new onset of grand mal seizure activity and/or unexplained coma during pregnancy or postpartum in a woman with signs or symptoms of preeclampsia.
The clinical manifestations of maternal preeclampsia are hypertension and proteinuria with or without coexisting systemic abnormalities involving the kidneys, liver, or blood. There is also a fetal manifestation of preeclampsia involving fetal growth restriction, reduced amniotic fluid, and abnormal fetal oxygenation. HELLP syndrome is a severe form of preeclampsia and involves hemolytic anemia, elevated liver function tests (LFTs), and low platelet count.
Course of Eclamptic Seizures
Eclampsia manifests as 1 seizure or more, with each seizure generally lasting 60-75 seconds. The patient’s face initially may become distorted, with protrusion of the eyes, and foaming at the mouth may occur. Respiration ceases for the duration of the seizure.
Eclamptic seizures may be divided into 2 phases. Phase 1 lasts 15-20 seconds and begins with facial twitching. The body becomes rigid, leading to generalized muscular contractions.
Phase 2 lasts about 60 seconds. It starts in the jaw, moves to the muscles of the face and eyelids, and then spreads throughout the body. The muscles begin alternating between contracting and relaxing in rapid sequence.
A coma or period of unconsciousness, lasting for a variable period, follows phase 2. After the coma phase, the patient may regain some consciousness, and she may become combative and very agitated. However, the patient will have no recollection of the seizure.
A period of hyperventilation occurs after the tonic-clonic seizure. This compensates for the respiratory and lactic acidosis that develops during the apneic phase.
Seizure-induced complications can include tongue biting, head trauma, broken bones, and aspiration.
Features of eclampsia include the following:
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Seizure or postictal state (100%)
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Headache (80%), usually frontal
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Generalized edema (50%)
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Vision disturbance (40%), such as blurred vision and photophobia
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Right upper quadrant abdominal pain with nausea (20%)
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Amnesia and other mental status changes
And that’s exactly what happened to me! Hello! I cannot believe that I had almost every single one of those symptoms and yet it took days for them to figure it out. Precious days that I could have died or worse, had a stroke that left me a completely different person, due to my blood pressure being at such dangerous levels. The hospital, Mountain Vista Medical Center, is unbelievable and I would never ever go back or recommend anybody to ever go there in an emergency. They have signs posted all over and on billboards along the freeway that talk about their stroke response team (i.e. “MVMC received its national Primary Stroke Center certification from DNV Healthcare – just five months after receiving Level IV Trauma Center designation from the Arizona Department of Health Services. The Stroke Center certification means that the stroke response staff at MVMC follows the requirements and protocols that have been established by the Guidelines of the Brain Attack Coalition and recommendations of the American Stroke Association to care for stroke patients. Such guidelines include following the required methods to fast-track patients suspected of stroke so that physicians on the medical staff can begin brain-saving treatments immediately.) They never shown a light in my eyes, never asked me any questions, asked me to smile, or anything that they tell you to do if you suspect somebody is having a stroke. Just unbelievable!
Anyways, I was continued on blood pressure meds round the clock, every 8 hours, and slowly going insane from being in the hospital for so long. My back was killing me (and still is) from sitting in that damn bed and I was just so angry at the whole situation. I lost so many precious days with Finn that I could have been spending happily at home and learning how to be a mom. Instead I was stuck in a hospital and couldn’t really do anything myself including get out of bed until the last 2 days. I’m still in complete shock about the situation and still break down about it every once in a while when I am able to somewhat grasp the magnitude of what happened. I’m so angry at my OBGYN, the ER doctors, the hospital… the only people that actually helped me were the eye doctor who insisted on having me readmitted, the neurologist who ordered the right tests and finally determined it was blood pressure related, and the nurses who cared for me. I feel like I really do have the biggest lawsuit on my hands!
I was finally able to go home on Saturday because my blood pressure had lowered enough that it was safe for me to not have to be under a doctor’s direct care (with medications). I was ecstatic to go home even though I knew the road to recovery was going to be long and hard (that’s what she said?) especially with my now 2 week old baby. As far as how I’m doing and my recovery – I’ll save that for another post. This one has been long enough.